HB 1855: Representative Mazzie Christensen’s Failed Privacy Amendment Exposed the House
Some votes tell you more than a dozen campaign mailers ever will. The fight over Representative Mazzie Christensen’s amendment to HB 1855 was one of those votes. It drew a bright line between representatives who believed patient consent and medical privacy still matter, and those willing to let government reporting override them in the name of “public health.”
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This is the core question: Should the government be allowed to compel participation in a reporting system tied to a person’s medical test results without that person’s consent? That was the liberty question in front of the House on March 25. A majority chose government collection over patient choice.
Floor discussion and vote on Representative Mazzie Christensen’s amendment to HB 1855.
HB 1855 itself is framed as an alpha-gal reporting bill, but the amendment fight was about something much broader: whether Missourians still have the right to say no before their personal health information is pulled into a state reporting pipeline. Some legislators saw that clearly. Too many did not.
What HB 1855 actually does
The perfected House Committee Substitute for HB 1855 repeals and reenacts section 192.020 and adds alpha-gal syndrome to the Department of Health and Senior Services’ list of reportable diseases and conditions. It requires a laboratory that finalizes a qualifying positive test to submit a case report within seven days, sets the test-result threshold that triggers reporting, authorizes department follow-up using random sampling subject to appropriations, and requires an annual report to the CDC summarizing findings related to reporting and incidence.
- Adds alpha-gal syndrome to Missouri’s reportable condition list.
- Requires labs to report qualifying positive tests within seven days.
- Uses an electronic reporting system developed by DHSS.
- Allows state follow-up on reported cases, subject to appropriations.
- Requires an annual summary report to the CDC.
During floor debate, the bill sponsor openly described the measure as a “surveillance bill,” a “data bill,” and a “visibility bill.” That matters. Supporters wanted the state to count cases, identify hotspots, and compile better numbers. The question raised by Christensen’s amendment was whether that surveillance should happen with consent or without it.
What Christensen’s amendment would have done
The amendment was not complicated. It would have inserted an explicit consent requirement into the reporting structure. In practical terms, it would have done three things:
- Added patient-consent language near the reporting provision.
- Declared that no patient shall be required to participate in the reporting process under the section.
- Blocked reporting unless the patient gave written consent in advance before alpha-gal testing was administered.
Why this mattered: The amendment did not stop anyone from getting tested. It did not ban doctors from diagnosing alpha-gal. It did not prevent treatment. It dealt with one narrow but critical point: whether the state gets to receive a patient-linked report without that patient’s informed consent.
Supporters of the bill made their priority clear
Opponents of the amendment argued that an opt-in system would “gut” the bill because incomplete reporting would produce incomplete numbers. In other words, their argument was that patient consent would make the state’s data less useful. That argument is revealing precisely because it puts the government’s interest in collecting a fuller dataset above the citizen’s interest in controlling what happens to his or her personal medical information.
To be fair, the debate also clarified an important detail: the bill does not send a patient’s blood sample to DHSS. The bill requires laboratories to report qualifying positive results, and the CDC receives an annual summary report under the bill’s text. Supporters repeatedly stressed HIPAA compliance and de-identified reporting to the CDC. But even if the system is legally compliant, that still leaves the real principle untouched: should the government be allowed to compel the reporting itself without consent?
Why this vote matters beyond HB 1855
Some votes are very telling because they expose a legislator’s default instinct. When the pressure is on, does that lawmaker side with liberty, or with bureaucratic collection? Does he or she start from the premise that your rights come first, or from the premise that government should get what it wants if officials think the subject matter is important enough?
This vote mattered because it was not really about just one condition. It was about a governing philosophy. If lawmakers are comfortable overriding consent here, on a noncommunicable condition, they are showing you something about how they think when “public health” is invoked. And Missourians are not guessing about where that mentality can lead. We are only a few years removed from the COVID era, when Americans were pushed toward contact tracing systems, status-based restrictions, phone-based monitoring ideas, and other “temporary” intrusions that chewed away at liberty and privacy.
Benjamin Franklin is often credited with warning that a people willing to trade essential liberty for temporary safety will end up with neither. Whether every modern politician likes that comparison or not, the principle still applies.
That is why this amendment vote deserves attention. This was a chance for representatives to say, “Yes, the condition is real. Yes, people need help. But no, the state does not get to bypass consent.” Forty-one representatives took that stand. Eighty-five did not.
This article is not denying alpha-gal is real or serious. It is. Families dealing with it deserve compassion, honesty, good medicine, and real help. But a serious problem does not automatically justify every surveillance-style answer government proposes. Rights and consent still matter.
A little background on the bill itself
Because this article is liberty-focused, the bill’s policy background should stay in its proper place. HB 1855 is not an enormous omnibus measure. It is a short disease-surveillance bill that adds one condition to Missouri’s reporting framework. The fiscal note estimates General Revenue costs of $243,212 in FY 2027, $260,039 in FY 2028, and $264,587 in FY 2029. It also notes new staffing needs, although the FTE figures in the note are not perfectly clean and deserve a second look before anyone describes the staffing impact with too much precision.
Even there, though, the pattern is familiar: new reporting, new systems, new state work, new taxpayer cost. A bill can be emotionally compelling and still move Missouri toward more centralized data collection and more bureaucracy. That is exactly why amendment fights matter.
How the House voted on Christensen’s amendment
The official roll call shows the amendment failed by a vote of 41 yes to 85 no, with 10 present, 22 absent, and 5 vacancies. Act for Missouri’s vote page breaks the yes and no coalitions out by party: the 41 yes votes included 38 Republicans and 3 Democrats, while the 85 no votes included 52 Republicans and 33 Democrats.
Voted YES (41)
Supported the consent / privacy amendment · 38 Republicans · 3 Democrats
Voted NO (85)
Rejected the consent / privacy amendment · 52 Republicans · 33 Democrats
Present (10)
Recorded present, not voting yes or no
Absent (22)
Not recorded as voting on the amendment · 5 vacancies also existed
What this should tell Missouri voters
Legislators often say they are for privacy, limited government, and informed consent. But those claims only mean something when there is a real vote on the board. This was one of those tests. The House was given a direct chance to say that Missourians should be allowed to opt in before their test results are reported into a state-controlled system. A large majority refused.
That does not make every member who voted no malicious. Some were clearly persuaded that complete reporting was necessary to build a meaningful dataset. But that is exactly the point: when forced to choose, they prioritized the state’s ability to gather fuller information over the patient’s right to say no. Voters should remember that.
And voters should especially remember it because this issue will not stay confined to alpha-gal. Once lawmakers normalize the idea that important policy goals justify bypassing consent, that same logic can be carried into the next health database, the next education database, the next financial-monitoring proposal, and the next “public safety” exception.
Full Floor discussion and vote on HB 1855.
Primary source links
HB 1855 (Perfected HCS)
Official bill text showing the reporting framework added to section 192.020.
Open official bill PDFHB 1855 Fiscal Note
Oversight estimate of annual General Revenue cost and staffing impacts.
Open fiscal note PDFOfficial Roll Call
The Missouri House roll call for Christensen’s amendment to HB 1855.
Open roll call PDFAct for Missouri Vote Page
Vote breakdown with party affiliation and finance context.
Open Act4MO vote page